London Down Syndrome Association

My son Anthony is now 4 years old. I remember the day he was born like it was yesterday. Not because I had just delivered a beautiful baby boy but because my world changed in an instant. Seconds after my son was born a nurse said there may be some extra people in the room as it looks like your son has Down Syndrome. I wish I could say that it didn't matter at the time but my world stopped in that moment. It took me a few days to process the information and realize that it was going to be ok. Little did I know that those first few days in the NICU I was given a gift of hope (a package from the London Down Syndrome Association). After a month or two I finally looked into that package and was able to be connected to a group of people that would be my supporters in hard times and in celebrations. In the 4 short years that my son has been involved, the LDSA has provided much needed support. We have attended several play dates, BBQ's, Music Therapy, support groups, and received a bursary for speech therapy. These are all wonderful things but more than that the LDSA has allowed me to build a support network for Anthony, his sister and myself.

Anthony has a place to connect with kids just like him of all ages and abilities. My daughter Olivia has the opportunity to be exposed to other children like her brother and other kids that have siblings with Down Syndrome. I am so lucky to have a wonderful group of parents that I can talk to about concerns and worries. Parents that understand my unique situation, parents that help me celebrate Anthony's every achievement because they too have waited longer to reach each milestone.

I am a single mom with a child that has a disability but the LDSA provides me with support to make this journey a little less bumpy. Anthony is perfect just the way he is and I am thankful for every day, every smile and every laugh.

Thank you

- Rose

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